Schedule It

If you or someone you know has Lyme, there is no question in your mind about how important rest is. The problem is, when we feel well enough to do anything, we want to 'ride the wave'.The temptation to do too much is so common....

Lyme Life ~ Camp

It's Camp Week!For those of us who have been involved in Wilderness Camp, it is an exciting time; culminating years of preparation for some and months for others. Wilderness Camp is a teen-run, week-long, day-camp with adult helpers on site. The teens create their lessons,...

Lyme Life Monday ~The Dash

Our pastor asked an important question this week. What are you going to do with your dash?The dash, the line that separates the date we were born from the date we die. Having been so sick for so long, I always found a way to...

Lyme Life Monday ~ Moms

Many of the moms I know are high energy and high functioning. Even in families wherein the children go to school, they seem to be able to attend all of the extracurricular activities and special events, maintain the home and have a social life. Many...

Lyme Life Monday ~Pain

Pain is part of life. No one is immune. No one can fully escape the reality of dealing with pain at one time or another.For Lymies, pain is a very substantial part of life. I remember one nurse telling me that people with chronic pain...

Lyme Life Monday ~Kaleidoscope Eyes

The latest disturbing symptom of Lyme for me is what I call kaleidoscope eyes. A portion of my field of vision becomes distorted and the image is superimposed over the rest of whatever it is I see. Just imagine looking through a window, but one...

Lyme Life Memorial Day

My husband and I went to church yesterday. They played a song in which the lyrics said, "I dance for my Father. My Father sings over me." That actually stung a little. My natural father was a draft dodger, a pedophile, and a rapist. I...

Lyme Life Monday ~Dissociation

Dissociation is exhausting. It takes so much energy. I rest before and after any kind of activity, but it's another level to be at a gathering, a party or a meeting. It is so worth it, though.My body hurts but I don't want that to...

Lyme Life Monday ~ Drama Queens

When I sought relief for pain and fatigue in the 80s, most doctors told me I was stressed out. I couldn't say anything that my primary physician would pursue. I had a number of crazy symptoms that caused my neighbor to become concerned, she called...